NIH Public Health Emergency and Disaster Research Response (DR2)This website provides access to COVID-19 related data collection tools (CRFs, DCFs, instruments, surveys, questionnaires) that are currently in use.
We hope that investigators will consider choosing from these tools rather than developing new ones. The source of each instrument has been verified and contact information is provided in case additional information is needed. We are also striving to provide access to study protocols/study designs and data dictionaries to enhance timeliness for end use, as well as data interoperability and harmonization. Please note, these data collection tools cannot be considered broadly validated and investigators are encouraged to perform validation studies.
Another important resource is the PhenX Toolkit: https://www.phenxtoolkit.org/covid19 which provides access to many of the COVID-19 instruments contained in the DR2 collection, but broken down into specific topic areas for improved ease of use. The PhenX Toolkit also provides recommended standard data collection protocols for conducting biomedical research.